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маvєяık
Posts: 3323
Location: Brisbane, Queensland
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Something hit me the other day.. i think it was when the nurse screwed up my dosage of irinotecan(chemo drug) while i was in the day therapy unit from 20ml an hour to 120mls, and my head was spinning, my eyes rolling into the back of my head and a dizzyness that i immediatly associated with death.
What followed was possibly the worst three to four days i've ever had to endure throught a chemotherapy course ever, anything i even attempted to eat, was soon brought back up, and with the heat at some of the hottest it's ever been, my lack of being able to swallow anything didn't help the dehydration. My mum constantly worrying about me and the nurses urging me to go back to the hospital on tuesday to get a few hours worth of liquids didn't make me feel comfortable at all as the last thing i wanted to do was go to hospital, but i guess it could be better than dying. I perservered and tried drinking anything i could, managed to drink some sars, and sucked on 3-4 ice cubes, i was running very low that day, i assure you. If you don't know from previous things i've said about my chemotherapy, i actually also take home a bottle of it for 3 days Monday and taken out Wednesday in which it flows through my body slowly in said time, having a needle stuck in your chest for three days isn't the most pleasant experience and to be honest, normally i'm quite tough on the exterior but looking at it makes me nautious. I'd always seen myself as quite a tough person, having beaten cancer twice and taking it head on for the third time, but with the spread of it from my liver, which it's quite extensively taken over, and gone onto my lungs, where there are currently two spots, and the word incurable ringing throughout my mind, i thought there has to be some other way, there's no way i want 12 months of half the time being sick just to "extend my life" when i could have 6 months and it be exactly the same. I've decided today, after half recovering from what's left over of the treatment that my chemotherapy will, %95 percent chance, be stopping. I've endured alot, but i can't endure anymore, it may sound weak, but don't disown me just yet, i've decided to try alternative therapies, rather then the conventional ways, one of which i've heard good things about from various different people who don't know each other and have all brought it to my attention. That therapy is called apricot kernals, a seed which i have to eat quite frequently during the day, and apparently has quite a bad taste, but has cancer curing effects. now it's not guaranteed to work, but what in life is? i'm also putting my name down for the radio wave therapy at the perth hospital and hopefully that will also come to fruition, and last but not least, although i'm not religious in anyway shape or form, i'm putting my faith into prayer and going to visit a pastor who believes he may have what it takes to cure cancer as he's done to 7 other people. this may all sound a bit ridiculous to some of you, but i've realised that all through my cancer life i've been so narrow minded and i've never once stopped to think about the possibilites outside of conventional medicine. some may call me crazy, but i'm at the end of the line with chemotherapy, and those who have been there, and i know some have. will know how i'm feeling. The update pretty much is that my cancer is incurable through conventional medicine, and there was probably a 10 percent chance that they could shrink the spots enough to operate. Feel free to ask me any questions, i've researched the apricot kernals and all other therapies so don't think i'm making quite a rash decision as i've been thinking about it from day one treatment one of my chemo. |
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| #0 10:49pm 09/12/05 |
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d[o_0]b
Posts: 570
Location: Brisbane, Queensland
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you should not be thinking how can i beat it but more, how can it get me laid?
seriosuly tho, good luck mate - i would do exactly the same in your situation. |
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| #1 10:52pm 09/12/05 |
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SquarkyD
Posts: 5531
Location: Brisbane, Queensland
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i couldnt imagine what it would be like to have to go through all of that. you've been so strong tho so hang in there man.
btw do you get on msn much these days? cant seem to find your contact not sure if it made it onto my new email - hit me up would be good to catch up again, birdwiser84 att hawtmail. |
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| #2 10:58pm 09/12/05 |
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Joanna
Posts: 748
Location: Brisbane, Queensland
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dale!
you'll be right, you've done it before and you can do it again. and for the last time, no more of this nonsence, soon enough you'll be living a healthy life. Good luck dude. :) |
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| #3 11:02pm 09/12/05 |
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Tung
Posts: 3591
Location: Brisbane, Queensland
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big ups from me dale. just dont lose faith and turn your back on conventional therapy, sometimes all it takes is a break. im not slagging anything on unconventional therapies, or saying that conventional is the only way, but it could just need a mix of the two
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| #4 11:06pm 09/12/05 |
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Bah
Posts: 1663
Location: Brisbane, Queensland
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Get 20 credit cards, run up 100's of thousands of dollars in debt, commit some major crimes - you are guaranteed to live.
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| #5 11:22pm 09/12/05 |
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WhiteWolf
Posts: 2076
Location: Brisbane, Queensland
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good luck grunt, just make sure you use all the options you see fit. i couldn't possibly imagine how much this sucks for you, also try and keep your options open.
last edited by WhiteWolf at 23:34:03 09/Dec/05 |
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| #6 11:34pm 09/12/05 |
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A_W
Posts: 1194
Location: Brisbane, Queensland
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You should look into and see if anyone does the same kinda thing that Dr John (i think) Holtz used to do before he retired. 1000's of happy paitents can't be wrong. Of course he was written off by the general medical establishment, but this can be compared to the big oil companies scoffing at renewable energy. Critisim not motivated by benefit for the end user. Oil is only money tho, medicine is peoples lives as well. Much more disturbing. Anyhow your doing the right thing by seeking out alternative treatments. Just be sure not to get sucked into anything miricle-ish. Anything should have a high number of provable successes and also the practitioners should have long term reputable qualifications. Conventional isn't always the best, it's just the most used. Relevent higher forces bless you Mav and may you get well again soon. p.s you could sue that nurse for negligence if you had the $$$ for it. She could have killed you with an OD. |
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| #7 11:39pm 09/12/05 |
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Crizane Tribal
Posts: 1060
Location: Brisbane, Queensland
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I wish you the best of luck, dude. You've shown a level of maturity and courage I never would have expected.
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| #8 11:39pm 09/12/05 |
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Fish
Posts: 1875
Location: Brisbane, Queensland
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God that sucks!
It's good to see that you've actually put some effort into researching into the alternative cures rather than just jumping on random bandwagons (much like a number of forum goers usual do). And it's interesting that it seems that you're also putting your faith in a religion. not that there's anything bad with that, but at least it should bring some peace into the whole situation. But during my youth when I was still a biblebasher, I've seem some weird s*** happen with those miricle healings. |
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| #9 12:08am 10/12/05 |
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dais
Posts: 7551
Location: Brisbane, Queensland
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Man given what you've said about your chances with chemotherapy I think you've got the right idea. Grab hold of anything that makes you feel better, anything you think makes a difference and you feel confidence in.
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| #10 12:39am 10/12/05 |
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Death Ranger
Posts: 102
Location: Cairns, Queensland
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It's good to see that you've actually put some effort into researching into the alternative cures rather than just jumping on random bandwagons (much like a number of forum goers usual do). I wouldn't exactly follow any serious bandwagons qgl has to offer, as it is all a joke, beside how f***ing girly obes' car is. die |
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| #11 01:20am 10/12/05 |
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paveway
Posts: 3005
Location: Brisbane, Queensland
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f*** this is bulls*** man
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| #12 01:31am 10/12/05 |
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möoby
Posts: 3054
Location: UK
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^^ what? (to the bulls*** quote)
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| #13 01:38am 10/12/05 |
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mkiii
Posts: 56
Location: Gold Coast, Queensland
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long time lurker first time poster in dale threads;
man best of luck hey, I hope you recover in anyway possible :) |
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| #14 01:44am 10/12/05 |
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shad
Posts: 1447
Location: Brisbane, Queensland
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What would the quality of life be like with the alternative methods vs using traditional methods?
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| #15 02:10am 10/12/05 |
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pillsy
Posts: 362
Location: Brisbane, Queensland
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what steps can i take to prevent cancer?
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| #16 02:14am 10/12/05 |
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typo
Posts: 4588
Location: Brisbane, Queensland
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Or just leave his next of kin with the bill of credit cards. |
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| #17 03:19am 10/12/05 |
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simE
Posts: 5722
Location: Wynnum, Queensland
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Good luck brus, hope its painless. you'll be right, just have faith
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| #18 04:07am 10/12/05 |
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Psycho!
Posts: 5362
Location: Brisbane, Queensland
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s*** and I thought I was having a bad year with my health probs. A few questions, how old are you? and specifically what type of Cancer is it?
I have a workmate going thru the same s*** at the mo. He was a fitness fanatic, ran most days ect.. until he noticed a nasty lump in his leg. He thought it was a shinspliny from jogging ect.. Anyway it eventually started to make him limp and he finally got it checked out. Well it was a cancerous tumour, they bombarded it with radiation to shrink it to a size they could cut out, which they did and he came back to work. Anyway, I have been off work for a long time and I was told the other day that the cancer had come back and was in his chest and lungs and they were going to operate on him early December. I have tried to contact him but cant get an answer at his house (they may have operated already for all I know). So Mav, I guess I would go with what Tung said, maybe a complimentary mix of both traditional and alternative medicines might be worth a go. BUT I would be vary warry of people offering miracle/religious/whacko cures and promises. Unfortuneately there are a lot of pricks out there that take advantage of people in desperate situations and prey on their weakend emotional and psyhical state. Good luck dude. p.s what hospital do you go to? I was at the Wesley the other day and there was a guy in front of me with his Mum and Dad talking to the Pharmacist about pain management ect..and he looked really crook. not you was it? I was standing in line for my morphine and was about to recommend them to him. :P |
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| #19 10:16am 10/12/05 |
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Chakas
Posts: 682
Location: Brisbane, Queensland
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Coming from a science background I personally couldn't recomend the alternative therapies because most of the time they use annecdotal claims as evidence (or even worse "proof"). That's the issue with science it proves if something works so you can trust it but that takes time. It is possible that some or even several new treatments work better than the conventional methods but it won't be realised and accepted until a massive body of work has been done on it. The flip side of this is the smaller the body of evidence behind something, the less likely it is to be one of the effective treatments.
Admittedly I only work on plant genes that have versions in humans that can be responsible for cancer. So I'm only peripherally involved in this and the small amount of focus I have is on the causes not the cures. More importantly I don't know what it's like to go through what you're going through, so you can only take my advice for the very little that it's worth. Anyway, msn me at chakas89 at hawtmail dawt com if you want to talk more. Obviously I want to get back to having beers with you at Billy's place again and it goes without saying I'll help you anyway I can. |
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| #20 10:44am 10/12/05 |
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Pingu
Posts: 75
Location: Brisbane, Queensland
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Anyhow your doing the right thing by seeking out alternative treatments. Just be sure not to get sucked into anything miricle-ish. Anything should have a high number of provable successes and also the practitioners should have long term reputable qualifications. Conventional isn't always the best, it's just the most used.
I say try anything and everything, even the miracles of religion. I just recently had an uncle who went to a priest (not sure who) thinking it would be his last confession seeing that the doctor said he only had about 1 month to live but when he got there the priest told him he was cured. Anyway next checkup he was cleared of cancer. Im not even sure if I believed that story when the man told it to me first hand but wtf did the cancer go? |
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| #21 11:36am 10/12/05 |
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TiT
Posts: 848
Location: Brisbane, Queensland
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Good Luck mate you have everyone on QGL on your side!!!! BTW how old are you, I just can't believe it!
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| #22 11:40am 10/12/05 |
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amyescence
Posts: 87
Location: Brisbane, Queensland
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Wow. I'm so sorry to hear this, Dale. Some people have had really great results from alternative methods, so it's good to see you're giving that a shot.
Best of luck, we're all rooting for you. |
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| #23 11:54am 10/12/05 |
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masta_blasta
Posts: 717
Location: Brisbane, Queensland
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Best of luck dude.
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| #24 12:56pm 10/12/05 |
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JigZie
Posts: 2374
Location: Brisbane, Queensland
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Duder much much respect to you, your a touch little cookie AND damn fine looking too ;) if ya need anything give me a bell.
Good luck brother. |
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| #25 02:55pm 10/12/05 |
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маvєяık
Posts: 3324
Location: Brisbane, Queensland
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thanks guys, as much as i'm wanting one of these alternative treatments to work, and i will be putting all my faith into them, i'm not stupid as well, and as i said in my first post nothings guaranteed, i'm 19 by the way. and no psycho it wouldn't of been me, i'm the type of person when it comes to hospitals to do as little complaining as possible purely so i can get out of there faster. the only reason that they found out my chemo was going in too quickly was because i started falling asleep and my mum asked me if anything was wrong, and i said well.. i do feel a little dizzy. ehe
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| #26 05:05pm 10/12/05 |
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Obes
Posts: 4086
Location: Brisbane, Queensland
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Personally go enjoy life while you can.
(note the numbers I am just making up) 3 months of kick ass fun, 3 months in hospital dying are far far better then 6 to 12 months of chemo, crap and still dying but no fun. From what little I know about cancer, The fact that you have cancer that has metastasized in to multiple major organs is bad. Isn't Lance Armstrong pretty much the only person to have truely beaten a metastasized cancer (ie. beaten means no cancer cells present as opposed to partial remission) ? |
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| #27 06:56pm 10/12/05 |
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Death Ranger
Posts: 103
Location: Cairns, Queensland
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is there a 'i hope obes gets cancer' bandwagon, because id surely jump on it
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| #28 07:09pm 10/12/05 |
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eK
Posts: 9609
Location: Brisbane, Queensland
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all the best dale
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| #29 07:14pm 10/12/05 |
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Obes
Posts: 4087
Location: Brisbane, Queensland
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*shrug* the way I looked after my skin when I was a kid. I am a dead set cert for a minimum BCCs and probably melanomas (which if not treated are a death sentance). Smoked when I was younger so a chance of lung cancer. Plus a modern lifestyle (and a moderately unhealthy one at that) means I have a decent chance of testicular, prostate, liver, intestinal cancers.
Cancer happens, so does death. How you live matters how you die doesn't. I am just one of those people that does not want to live on a ventalator or be revived. (I'd get a Do not revive tat on my chest but aparently it doesn't mean anything.. you have to have an advanced health care directive to prevent being revived/ventalated and it has to be carried on you at the time, and they have to accidentally find it) |
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| #30 07:17pm 10/12/05 |
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Death Ranger
Posts: 104
Location: Cairns, Queensland
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who else is joining me on this awesome bandwagon
well if you come into the hospital ill be sure to not revive you and i would crash your car |
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| #31 07:24pm 10/12/05 |
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koopz
Posts: 5554
Location: Queensland
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...as much as i'm wanting one of these alternative treatments to work... an alternative to letting others do something for you? not in this society dude. it's moments like this that scuzzy's imortal words ring true: 'natural selection at it's finest' ++motivation |
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| #32 08:09pm 10/12/05 |
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nF
Posts: 11977
Location: Wynnum, Queensland
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best of luck with whatever way you choose to go dale
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| #33 08:54pm 10/12/05 |
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evis
Posts: 5474
Location: Brisbane, Queensland
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Dale, I haven't posted in any of your threads but read everything you have had to say. I just haven't really thought of anything to say. You have been a good friend. You have changed alot though over the time I have known you but I don't blame you having the s*** thrown at you that you have. I have always been here for you but really not known how to be that person if you know what I mean. Having to face something as extreme as cancer would really f*** with your head and I really can't imagine the thoughts I would think or what action I would take. People who say "wow you have shown a maturity I never expected" I really don't think is the right thing to say, it's not really about maturity, it's simply the will to live. That is what is most important. Where there is a will, there's a way. If you believe in yourself, the favour of an outcome can certainly swing in a far different way than the odds as it were would describe. Best of luck champ, I for one will be there if only for an ear to talk to and from personal experience that can be a powerful thing.
You have been dealt a card that most will never be dealt, obviously you have thought in great depth about this card as it were, and with no obvious winning hand I can understand the frustration you must feel. I know if this happened to me I would wonder why, the answer to that is what you are no doubt finding out but I certainly wouldn't shut down from the world, much the opposite. I hope you can draw the courage and strength you will no doubt need to face the obstacles thrown in your path and I certainly hope they will be overcome so we may reminisce about this time much much further down the track over a drink or two, on me. All the strength in the world to you my friend. |
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| #34 03:02am 11/12/05 |
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Kat
Posts: 7103
Location:
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All I can suggest is not to close the door on ANY treatment.
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| #35 10:30am 11/12/05 |
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Lowgoz
Posts: 1304
Location: Brisbane, Queensland
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* N U K E D *
Reason: Inappropriate |
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#36 05:05pm 11/12/05
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d0mino
Posts: 2192
Location: Brisbane, Queensland
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* N U K E D *
Reason: Inappropriate |
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#37 05:05pm 11/12/05
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Dopefish
Posts: 1218
Location: Brisbane, Queensland
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Come on guys, not really appropriate to turn this into a kat bashing thread.
Good luck Mav |
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| #38 11:19am 11/12/05 |
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Lowgoz
Posts: 1305
Location: Brisbane, Queensland
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* N U K E D *
Reason: Inappropriate |
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#39 05:05pm 11/12/05
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WhiteWolf
Posts: 2078
Location: Brisbane, Queensland
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* N U K E D *
Reason: Inappropriate |
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#40 05:05pm 11/12/05
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mscactus
Posts: 1
Location: Queensland
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As one of the people who sits by watching the chemo go into Mav every fortnight...and the person who has to empty bucket after bucket (especially this past week) I am also the person who cannot make decisions for Mav anymore as he is over 18. I only found out this morning about his decision to stop his Chemo and go the alternative therapy route...and I would like to see him at least finish the last 2 Chemo treatments and get a scan and see if it has made any difference. However...I am just his mother... what I want to see my son do doesnt matter... I am all for alternate treatments and would do anything I could to take this whole thing away from him, but I am useless. I even had to come to this site to read his thoughts because he doesnt tell me. Whatever treatment he decides on I will be with him 100% of the way (hey Ill even go to the pastor for the healing session)!!!!
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| #41 01:19pm 11/12/05 |
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spoon
Posts: 258
Location: Brisbane, Queensland
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* N U K E D *
Reason: Inappropriate |
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#42 05:05pm 11/12/05
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spidz
Posts: 9366
Location: Brisbane, Queensland
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* N U K E D *
Reason: Inappropriate |
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#43 05:05pm 11/12/05
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Loki
Posts: 6228
Location: Brisbane, Queensland
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way to be a twat spidz.
Goodluck Dale, haven't seen you in awhile but maybe we'll catch up again someday. |
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| #44 02:05pm 11/12/05 |
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A_W
Posts: 1200
Location: Brisbane, Queensland
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* N U K E D *
Reason: Inappropriate |
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#45 05:05pm 11/12/05
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fpot
Posts: 12299
Location: Gold Coast, Queensland
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I guess this wouldn't be an appropriate time for a Grunt mum joke.
Best of luck Dale. |
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| #46 03:55pm 11/12/05 |
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mscactus
Posts: 2
Location: Queensland
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pmsl.. OMG is there Grunt mum jokes... sorry if i upset anyone by being emotional...
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| #47 05:10pm 11/12/05 |
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typo
Posts: 4599
Location: Brisbane, Queensland
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Smoked when I was younger so a chance of lung cancer You live in a urban culture, that has a higher chance of lung cancer right there. |
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| #48 05:50pm 11/12/05 |
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spidz
Posts: 9367
Location: Brisbane, Queensland
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wouldn't it be better to delete than nuke?
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| #49 06:47pm 11/12/05 |
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A_W
Posts: 1202
Location: Brisbane, Queensland
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Agreed. Let's try to keep the thread about the original subject. In appearance too.
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| #50 06:53pm 11/12/05 |
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Khel
Posts: 11030
Location: Wynnum, Queensland
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wouldn't it be better to delete than nuke? Deleting is too subtle for some people, they take it as an invitation to continue being stupid. It would have been nice if there wasn't any reason to need to delete or nuke at all, but I guess this is QGL after all, can't expect too much. Good luck Dale, whatever path you end up following. |
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| #51 08:29pm 11/12/05 |
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sLaps_Forehead
Posts: 2225
Location: Brisbane, Queensland
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After reading this post, I'm not gonna worry about the 'little' things anymore.
I hope the apricot treatment works, dude. |
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| #52 10:19pm 11/12/05 |
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brett
Posts: 1826
Location: Sydney, New South Wales
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It can happen, my old lady was given six months to live when she had thyroid cancer - that was eleven years ago now and she's made a full recovery with a mix of conventional & non-conventional medicines.
best of luck mate |
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| #53 11:17pm 11/12/05 |
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Hogfather
Posts: 853
Location: Cairns, Queensland
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Sucks :(
Good luck Grunt and family. If you go the path of alternative remedies from here I hope that works out for you. Your mum has a point though, it might be worth giving chemo a go for a short while to see if it has any positive effect (but then its not my body and I'm not the one enduring it). Just hope you get better :\ |
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| #54 11:20pm 11/12/05 |
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Fireman Sam
Posts: 2
Location: Brisbane, Queensland
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My brother was given 2 weeks to live and completely taken off all drugs 3 times during his bout with cancer. He came through it all, sometimes your body needs to just recover from chemo to get better though I would reccomend finishing the course you are on before dumping it completely.
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| #55 09:57am 12/12/05 |
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captivate
Posts: 314
Location: Brisbane, Queensland
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At the end of the day, this is your life, and your body. You are the only one that will truely understand what you are going through. You are the only one that will know how your dealing and how much you are prepared to take. You are the only one that needs to feel comfortable with the decisions you are making.
You obviously have alot of people that love you and want the best for you, and its so special that you have that support. You should listen to their opinions and at least take them into consideration. Look after yourself though, because this is about you, and personally I know I would be trying everything before giving up. Alot of people dont put much faith in alternative medicines, but if conventional methods of treatment arent working for you either, then what have you go to lose? Listen to yourself, I wish you the very best and you will be in my thoughts. <3 |
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| #56 01:23pm 12/12/05 |
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taggs
Posts: 550
Location: Brisbane, Queensland
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Matey, I've never met you but I know someone who has and if what everyone has been saying in your threads for the last year or so is anything to go by you must be an absolute mad c***. All the best in whatever you do, stay strong buddy.
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| #57 02:42pm 12/12/05 |
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Crunch
Posts: 866
Location: Perth, Western Australia
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Good luck dude. Keep positive.
Also, keep an eye on this company: http://www.novogen.com/ Hopefully they should be commercialising their anti-cancer compound soon... |
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| #58 07:07pm 12/12/05 |
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| #58 |
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